Meet Ava. She's 14.5 Months...

Meet Ava. She's 14.5 Months...

Meet Ava. She's 14.5 Months & was recently diagnosed with Williams Syndrome. She's our Super Hero & we're on a mission to spread awareness about this rare genetic disorder that effects only about 20,000 lucky people in the US. When we first heard the news last week, I thought our life was ending. I wept on the floor for hours, made myself physically sick & was sent to bed at 5 o'clock feeling as though I was dying. All of the dreams I had for Ava were shattered. The future wouldn't be as I envisioned it. And what I was excited for had ended before it even started. Fast forward just a short week later & I can't even believe it myself, but I'm slowly starting to have feelings that this MAY just be the beginning...the beginning of a beautiful life with a meaningful purpose - something I also, have always wanted; a life with a deep purpose. New visions are being dreamed, new futures are making me excited again and life may just be a little bit better than I could have ever dreamt up myself. We were so blessed to be given Ava & we can't wait to share her story (& others' stories) with you on this page.

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The R-Word

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