I'm not exactly sure why I used the R-Word, but I did.
I even grew up with a Great Aunt who had Down syndrome — someone I loved very much — and yet I used that terrible word like it was no different than "apple" or "pretty".
"I could see Morgan was not developing like other toddlers. Morgan had major colic, was often fussy and definitely didn’t hit the developmental milestones on time. I was frustrated, confused and felt I had no answers or explanation on how I was experiencing being Morgan’s mother."
Ruby came into the world on November 11, 2004, at 3 lbs. 9 oz., 17 inches long. Ruby was diagnosed with a conditioned called, “Apple-peel intestinal atresia, ocular anomalies, and microcephaly syndrome” (now known as Stromme Syndrome). Ruby’s geneticist believes there are less than 50 cases of Stromme Syndrome in the world! Ruby and her momma, Angie, share their story on social media to help normalize differences and promote disability inclusion.
