Ava Connor gets 60% of the profits from this purchase! The rest goes to keep Outshine Labels running. Thanks for your support!
Are you a rare disease family? Get this Rare But Real t-shirt inspired by Ava!
About this item:
This super soft shirt reps a Saguaro cactus and raises awareness for rare diseases.
• 100% combed and ring-spun cotton
• Fabric weight: 4.2 oz/y² (142 g/m²)
• Relaxed fit
• Pre-shrunk fabric
• Side-seamed construction
• Crew neck
Ava was diagnosed with Williams Syndrome at 14.5 months old. She's now 5, is very social, and wants to be friends with everyone she meets. She's also the inspiration for Outshine Labels! Ava is one in about 30,000 people with Williams Syndrome.
"Rare but Real" was one of the first phrases we heard when Ava was diagnosed with Williams Syndrome, because it’s considered a “rare disease”. We chose the Saguaro Cactus for this design, because just like those with rare diseases, they are “rare but real” too! Saguaro Cacti can only be found in the Sonoran Desert, which runs through Arizona (where we live), Mexico and the Baja region of California.
About Williams Syndrome:
Williams Syndrome (WS) is a genetic condition present at birth. It can affect anyone around the world, and is caused by the spontaneous deletion of 26-28 genes on chromosome #7 at the time of conception.
Williams Syndrome is characterized by several medical problems, including cardiovascular disease, developmental delays, and learning challenges.
These often occur side by side with striking verbal abilities, highly social personalities, and an affinity for music.
All sales are final & non-refundable due to the charitable aspect of our business.
INCORRECT SIZING: Please refer to our size guides and fit notes to ensure you have selected the correct size. If your sizing is not quite right, we are happy to offer an exchange for the correct size.
FAULTY: If you received a defective item, please email us at email@example.com and we will happily arrange a replacement.
We try our best to be as sustainable as possible! All items are made to order to reduce the amount of waste that goes to landfill. Please allow 2-7 business days for processing as our team gets your order ready.
US: 3-5 business days after fulfilment
CANADA: 4-7 business days after fulfilment
REST OF WORLD: 5-10 business days after fulfilment
I received my t-shirt in the mail this past week & I’ve already washed & worn it. It’s very soft & I am pleased with the quality & feel. I am also proud to have helped in some small way with medical/financial needs for a sweet little boy💙
Love the shirt! It feels so soft and washing is easy. It fit perfect so get size you are.
Great way to support Levi and Lainey !! Excellent quality and so comfortable !!
Love my shirt
Me and my son are from Ar. We have followed and shared his story with so many to not only help out as much as we could in support but mostly to get prayers! We love our shirts. They’re super soft, super cute too!