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Diagnosed with William's Syndrome at 20

Diagnosed with William's Syndrome at 20

Meet Randi. She was diagnosed at the age of 20 (!) with Williams Syndrome; the same condition my daughter Ava was diagnosed with. This is a long, but good story! ...

Diagnosed with William's Syndrome at 20

Meet Randi. She was diagnosed at the age of 20 (!) with Williams Syndrome; the same condition my daughter Ava was diagnosed with. This is a long, but good story! ...

“We knew she was a fighter, and were never going to give up on her."

“We knew she was a fighter, and were never goin...

“We found out at a 13 week private ultrasound we were having a baby girl, but that there was something seriously wrong. The man who was doing the ultrasound pulled...

“We knew she was a fighter, and were never goin...

“We found out at a 13 week private ultrasound we were having a baby girl, but that there was something seriously wrong. The man who was doing the ultrasound pulled...

Connected by their genetics counselor

Connected by their genetics counselor

These two! 😍 Did you know they were connected by their Genetic Counselor? And that now they're BFFs for life...AND their Mamas are too? How amazing is that?!  Cristy is...

Connected by their genetics counselor

These two! 😍 Did you know they were connected by their Genetic Counselor? And that now they're BFFs for life...AND their Mamas are too? How amazing is that?!  Cristy is...

10 facts about Cooper

10 facts about Cooper

  1. Cooper just wants everyone to be happy! He is super sensitive to people's emotions. He will get very sad if he see that others are sad or crying,...

10 facts about Cooper

  1. Cooper just wants everyone to be happy! He is super sensitive to people's emotions. He will get very sad if he see that others are sad or crying,...

One in a Melon - Williams Syndrome

One in a Melon - Williams Syndrome

"Ava is One in a Melon" - I think my subconscious mind was (& is) ten steps ahead of me. This was Ava's 1st Birthday Party back in September -...

One in a Melon - Williams Syndrome

"Ava is One in a Melon" - I think my subconscious mind was (& is) ten steps ahead of me. This was Ava's 1st Birthday Party back in September -...

Before Diagnosis (Part 1) - Williams Syndrome

Before Diagnosis (Part 1) - Williams Syndrome

We had NO idea that Ava was born with Williams Syndrome. None. I mean...we had a couple of issues when she was born, but nothing too alarming. She weighed 7'11"...

1 comment

Before Diagnosis (Part 1) - Williams Syndrome

We had NO idea that Ava was born with Williams Syndrome. None. I mean...we had a couple of issues when she was born, but nothing too alarming. She weighed 7'11"...

1 comment